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<br />3 <br /> <br />As my five ye'lr olq living Angel, D'lviq (N'lmeq 'lfter D'lviq from the bible story D'lviq <br />'lnq GoIiGlth. D'lniel (from the story ofD'lniel in the lions qen) has leapeq mGlny mile <br />stones. Diagnoseq at thirteen weeks gestGltion with a rare conqition relGlteq to Spina <br />Binqa calleq Innencephaly anq having only five known survivors, Daviq was qiagnoseq <br />to qie. His neck hGlq literally collapseq que to the vertebra in his neck not forming <br />properly causing his heaq to rest on his back. The meqical fielq leapeq at the <br />opportunity for a science projectanq askeq "Woulq you give him to science to stUqy?" <br />I tolq them they woulq haveto wait for Daviq to qie of his own accorq. I believe Goq <br />has plans for him anq he will be maqe whole. For the next three months the meqical <br />staff attempteq to persuaqe me to "terminate" stating Daviq will never make it <br />anyway, how inconvenient he will be anq cramp our life (When were kiqs ever <br />convenientl) He will never live to birth. Ifhe lives to birth he won't last two weeks <br />even then he will be on machines for life support "... so you will have to pull him off <br />of the machines anyway...) To prove their point they put me on a fetal heart <br />monitor where we coulq see D'lviq's heart in color on this monitor. As the Doctor <br />was t'llking about his conqition 'lnq his I'lck of any ch'lnce for survival, his heGlrt rate <br />starteq to slow qown. As we watcheq it became slower anq slower. The Doctor <br />promptly st'lteq "He prob'lbly won't make it through the night" As a tear rolleq qown <br />my cheek I tumeq to my husbanq 'lnq saiq "This is the last time we or 'lny one will <br />qiscuss qeath or D'lviqis condition where he can he'lr it. I tolq them I qo not kill <br />chilqren, ifDaviq is to qie he will h'lve to qo it on his own. They then sent me back to <br />my regular OB who askeq me "what qo you wGlnt me to qo with you?" I tolq him to <br />tre'lt me like a regulGlr pregnancy. He promptly forgot Glbout me, tolq me to go to <br />Abbott on November gth for 'l C-Section. <br />D'lviq was qelivereq thGlt morning to a very nervous anq shaky meqical team. <br />The nurse that was supporting the PeqiGltric Specialist was qropping everything. I coulq <br />see her hanqs shaking from my table. ( I prayeq they qiqn't hanq my b'lby to her) My <br />sister was taping all of this. As they were resuscitating Daviq anq trying to stabilize his <br />breathing nurse tolq her I woulqn't want to see this anq that she shoulq stop filming <br />the operation. Julie stayeq strong 'lnq tolq the nurse that this might be the only time I <br />woulq get to see Daviq alive anq continues nlming. Once they got him st'lbilizeq they <br />starteq to run scans to see what theqamage was .GI(Daviq's he'lq was not connecteq to <br />his backas they once thought from the ultra sounqs). They came to me stating the <br />goOq news is Daviq has a new qiagnosis. The baq news is his prognosis isn't much <br />better. <br />This neW qiagnosis W'lS just 'lS serious but offereq 'l glimmer of hope for his <br />surviv'll. But not his progress. He now h'ls 'l qiagnosis ofSchizenceph'lly. A rare <br />conqition that h'ls a deft or cyst that qiviqes one half of the br'lin into two sections. It <br />acts very similar to Cerebral Palsy. The victims qisplay char'lcteristics of a stroke, <br />seizures, extra fluiq on the brain ( hyqroceph'lly) 'lnq very often h'lve many, m,my <br />