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<br />5 <br /> <br />skull to keep his neck stable. I t'emembet' people feeling so sony fot' him, poor baby. <br />have to chuckle, Daviq has never been so pain ft'ee. He was immeqiately happy anq <br />starteq leaming many new things while still in that halo. when we left the hospital <br />the qoctot' stateq Daviq shoulq qo gt'eat now, as long as he qon't stat'Ve to qeath. <br />Daviq has been hospitalizeq numet'ous times ft'om situations that t'ange from <br />aspiration pneumonia, seizures that cause him to stop breathing in 90 seconqs to me <br />just being pat'anoiq. He qiq have a feeqing tube placeq because he stoppeq eating by <br />mouth after the qouble neck surgery anq he was very tactile qefensive. Hateq to have <br />people touch him, especially arounq his throat. So baq that he woulq throw up. <br />Daviq has thriveq que to the superb care from 11 specialists anq the progt'ams he <br />is involveq with in the school anq the county. He has haq the most optimal <br />opportunities to make his life successful. The qoctots have finally quit preqicting his <br />qeath as he has far sutpasseq their wilqest qreams of life for him. Thanks to the <br />technology that the county has funqeq, Daviq has the equal opportunity to become a <br />"typical" little boy. I also feel because of the county programs anq the absolute <br />qevotion anq care of Social set'Vices, (Christine has not misseq one school meeting!) <br />Daviq is alloweq to be healthy anq leaq a safe anq functional life. He still has a way to <br />go. <br />Each year he gets stronger anq healthier. He still qoes not crawl like a <br />typical boy (he commanqo crawls) he still won't eat by mouth (it has been <br />pt'oven that he can but for some reason he won't) anq he cannot communicate <br />his pains or his wishes (he has leameq over 40 new worqs, he just neeqs to leam <br />the power of them), he has no qepth petception ( but he has finally leameq to <br />try to break his fall with his hanqs ifhe loses his balance) He is still a high risk for <br />hurting himself. He will still t'oll off the couch if alloweq to anq he still hits <br />himself with objects, perioqically has break through seizures that are not <br />contt'olleq by meqicines. Has uncontt'olleq phlegm that 2 qoctots are working <br />to finq the cause (Ear, nose anq throat anq the Gastrial/lntestinal) He likes to <br />throw heavy objects unaware of how it hurts himself or othets. Continuqlly <br />bqnging his heaq. As he is unqble to communicate whqt qoes hurt, I am <br />continually seeking the qoctots qqvice to make certain he is not bqnging his <br />heqq from pain. We believe it is his way of getting whqt he Wqsn't because if we <br />tum on one of his shows or pay attention to him he quits. He hqs to be <br />continually supet'Viseq on the floor as well. when he commqnqo crawls he will <br />go to the cupboarqs anq take out all of the pans (sounq typicaln but then he <br />will shut his fingets in the qoor. His bowels have to be monitoreq so he qoesn't <br />get pluggeq up anq have to be hospitalizeq for thqt as well. His beq has to have <br />very high rails as he can pull himself to a kneeling position anq I qon't want him <br />to pull himself over the rails anq fall to the floor. His beq has to be high enough <br />to promote healthy mechanics for lifting as well as to keep him from qny qrqft:s <br />that woulq compromise his immunity any further. <br />