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<br />3 <br /> <br />As my Ave year olc\ living Angel, Davic\ (Namec\ after Davic\ from the bible story Davic\ <br />,mc\ Goliath. Daniel (from the story of Daniel in the lions c\en) has leapec\ many mile <br />stones. Diagnosec\ at thirteen weeks gestation with a rare conc\ition relatec\ to Spina <br />BiAc\a callec\ InnencephClly anc\ having only Ave known survivors, Davic\ was c\iagnosec\ <br />to c\ie. His neck hClc\ literally collapsec\ c\ue to the vertebra in his neck not forming <br />properly cClusing his heac\ to rest on his bClck. The mec\icClI Aelc\ leapec\ at the <br />opportunity for a science projed Clnc\ Clskec\ "Woulc\ you give him to science to stuc\y?" <br />I tolc\ them they woulc\ have to wait for DClvic\ to c\ie of his own accorc\. I believe Goc\ <br />has plans for him anc\ he will be mac\e whole. For the next three months the mec\icClI <br />staff Clttemptec\ to persuClc\e me to "terminClte" stClting DClvic\ will never mClke it <br />anywClY, how inconvenient he will be anc\ cramp our life (When were kic\s ever <br />convenientO He will never live to birth. Ifhe lives to birth he won't IClst two weeks <br />even then he will be on machines for life support"... so you will have to pull him off <br />of the mClchines ClnywClY", ) To prove their point they put me on CI fetal heClrt <br />monitor where we coulc\ see DClvic\'s heart in color on this monitor. As the Dodor <br />WClS talking Clbout his conc\ition anc\ his IClck of Clny chClnce for survivClI, his heClrt rate <br />stClrtec\ to slow clown. As we wCltchec\ it became slower anc\ slower. The Doctor <br />promptly statec\ "He probClbly won't mClke it through the night" As CI teClr rollec\ clown <br />my cheek I turnec\ to my husbanc\ Clnc\ saic\ "This is the lClst time we or Clny one will <br />c\iscuss c\eClth or DClvic\'s conc\ition where he cCln heClr it. I tolc\ them I C\O not kill <br />chilc\ren, if DClvic\ is to c\ie he will have to C\O it on his own. They then sent me bClck to <br />my regulClr OB who Clskec\ me "whClt C\O you want me to C\O with you?" I tolc\ him to <br />treClt me like CI regular pregnClncy. He promptly forgot about me, tolc\ me to go to <br />Abbott on November sth for CI (-Section. <br />DClvic\ was c\e1iverec\ thClt morning to CI very nervous anc\ shaky mec\ical teClm. <br />The nurse thClt WClS supporting the Pec\iCltric SpeciCllist WClS c\ropping everything. I coulc\ <br />see her hanc\s shaking from my table. ( I prClyec\ they c\ic\n't hanc\ my bClby to her) My <br />sister WClS tClping ClIl of this. As they were resuscitClting DClVic\ Clnc\ trying to stabilize his <br />breathing nurse tolc\ her I woulc\n't wClnt to see this Clnc\ that she shoulc\ stop Aiming <br />the operCltion. Julie stClyec\ strong Clnc\ tolc\ the nurse that this might be the only time I <br />woulc\ get to see DClVic\ Cllive anc\ continues Aiming. Once they got him stClbilizec\ they <br />startec\ to run sCClns to see whClt the c\amClge WClS .a(DClvic\'s heClc\ WClS not connectec\ to <br />his bClck Cis they once thought from the ultra sounc\s). They came to me stating the <br />gooc\ news is Davic\ has CI new c\iClgnosis. The bClc\ news is his prognosis isn't much <br />better. <br />This new c\iClgnosis WClS just CiS serious but offerec\ CI glimmer of hope for his <br />survival. But not his progress. He now hCls a c\iagnosis of SchizencephClly. A rare <br />conc\ition that hCls CI deft or cyst thClt c\ivic\es one hCllf of the brClin into two sedions. It <br />Clds very similClr to (erebrClI Palsy. The victims c\isplClY chClraderistics of CI stroke, <br />seizures, extrCl fluic\ on the brain ( hyc\rocephClly) Clnc\ very often hClve mClny, mClny <br />